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Melanoma Independent Community Advisory Board |
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The 2nd M-ICAB (Melanoma Independent Community Advisory Board) meeting will take place on 23-24 April 2012 in Brussels. A pilot project of the European Cancer Patient Coalition (ECPC), the M-ICAB initiative brings together researchers, clinicians, pharmaceutical companies, cancer patients and patient-advocates in a truly multidisciplinary partnership to drive policy change at the European and national levels.
The conference will provide an opportunity for stakeholders to address the inequality of access to state-of-the-art therapies and challenges to achieving potential treatment advancements. Many of the sessions are designed to achieve consensus about how to improve access for patients to new treatments via clinical trials and to overcome regulatory, reimbursement and payer barriers. Following the meeting, a white paper will be developed, summarising the discussion about the way forward and how stakeholders can work together to address policy barriers.
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Best Cancer Reporter Award 2012: Call for Nominations |
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The European School of Oncology (ESO) is seeking nominations for its annual Best Cancer Reporter Award which honours excellence in cancer journalism. The Award – which has a top prize of €10,000 – is presented each year to a professional journalist who has made an outstanding contribution to enhancing public understanding about cancer. The winning journalist will be presented with the 2012 Best Cancer Reporter Award during the prestigious ESO event – The World Oncology Forum – which will take place on October 26-27 in Lugano, Switzerland. In addition, articles from award-winning journalists will be published in ESO’s Cancer World magazine.
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ECPC Patient Masterclass 2012 - Rieti (Italy) June 17-18. Register now! |
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ECPC is dedicated to supporting the work of patient organisations at national and international level - so we are delighted to invite you to join us in Rieti (Central Italy) on June 17-18. The Masterclass will be an interactive event, featuring debates and discussions on various issues from screening to rare cancers, and many others in between.
You will have the opportunity to meet with patient advocates, academic and policy representatives from all over Europe. While the event will include a number of presentations, the focus will be on open discussion, and all delegates will be strongly encouraged to participate. In particular, we will be presenting ECPC's involvement in the European Action Against Cancer (EPAAC) and the RareCancerNet project, and inviting you to contribute.
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European Personalised Medicine Alliance - launch event |
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On behalf of the European Alliance for Personalised Medicine (EAPM), we are pleased to announce that the launch will be taking place on 27th March in the European Parliament at 18.15.
We would welcome your attendance.
At the launch event, speakers will include Paola Testori Coggi, Director General of DG SANCO, Dr. Stavros Malas, Minister of Health from Cyprus, and Patricia Reilly from the Cabinet of DG Research and DG Enterprise. The launch will convene all of the players – patients and patient-advocates, politicians and commission officials, medical professional organizations- that have a stake in advancing the personalised medicine landscape and improving the regulatory environment.
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World Congress for Young Cancer Patients and Survivors |
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ECPC strongly welcomes an initiative to bring young cancer patients and survivors together on a global scale - the First World Congress for Young Cancer Patients and Survivors. The Fundacion Jovenes contra el cancer has organised this fantastic event with the support of the UICC (International Union Against Cancer) and other sponsors. It is taking place in Quito, Ecuador on 4-8 May 2012.
The organisers are covering all on-site costs for young delegates (cancer patients or survivors between 17 and 30) - accommodation, food and travel within the country. The only thing missing is the flight. The event will take place in Spanish, with translation offered into English and Chinese. There are also limited bursaries towards the costs of flights available to young delegates from less developed countries. Please contact the
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for more information.
If you are interested, please go to the website of the organisers to register. |
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As those who attended ECPC's AGM 2012 will know, we have over the last year been developing a new set of statutes, designed to make ECPC a more democratic and accountable organisation, and also to bring us in line with changes to national and European law.
The statutes were presented to the AGM in Antwerpen in November 2011, but in order to ensure that every organisation has the opportunity to vote on this significant decision, we held a vote by post and by email.
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International Childhood Cancer Awareness Day: What's Your Story? |
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Paul Catana tells his story here. If you have a story about childhood cancer you'd like to share, please send it to us and we will include it in our website and other publications
My name is Paul, I'm 23 years old and I live in Romania. Three years ago, I was diagnosed with Osteosarcoma in my right hand.
Everything started when I felt pain in my hand and it was 100% impossible to use it. I didn't go to the doctor straight away because I was busy studying, but when the pain persisted I was forced to ask for help. After several tests, the diagnosis was a hard one: OSTEOSARCOMA (bone cancer). At the beginning I didn't know what it was or what I should do. The doctors told me that I would have to have chemotherapy and again I didn't know what it was or what it did...
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ECPC-EURORDIS joint workshop on rare disease/cancer patient registries |
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This workshop, focusing on Patient Registries, will be the platform at the beginning of 2012 to call to all relevant stakeholders with a common aim and commitment to foster the establishment of Rare Disease/Rare Cancers Patient Registries throughout Europe.
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