ECPC's member of the month June 2010 is:

FRANK BOEYE (WERKGROEP HERSENTUMOREN, belgium)

My Organisation

Werkgroep Hersentumoren (Study Group Brain Tumors), WG-HT vzw

WG-HT vzw, or Study Group Brain Tumours, was founded in 2005, with the aid of Mrs. Kathy Oliver, IBTA.

The Study Group Brain Tumours has 4 goals:
1. Information of brain tumour patients and their surroundings
2. Organisation of contacts between brain tumour patients
3. Awareness
4. Advocacy

We work mainly at the Belgian, but also at the European level, in accordance with ECPC and IBTA.

Principal topics of the past years:
1. Treatment in centers of excellence
2. More treatment options
3. Psychological support during and after treatment
4. Social support for survivors and their families
5. Rights of persons with disabilities

My story

In 1997 I was diagnosed with an anaplastic astrocytoma (gr 3), under way of becoming a glioblastoma multiforme (gr 4). It was a very lethal type of brain cancer. I underwent surgery and radiotherapy. Then I received an experimental treatment with an antihormone, and it worked ...

I've lost my job, but since 2005 I am trying to help my fellow-sufferers and their families.

I am disabled, but still manage to sail our little boat, together with my wife Lia and daughter Aster. Their support and love are essential to me.

How to contact me

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

website: http://www.wg-hersentumoren.be

See also our previous ECPC Members of the Month.